Stoma World Kenya is a valuable friend of ostomates in Kenya and the East African region. It was founded in 2010 with the aim of providing patients living with ileostomies, urostomies, and colostomies with essential care and support. Our family consists of ostomates that come from different parts of the country and the East African region. This dynamic group of individuals inspire us to work tirelessly to ensure that they and ostomates from all walks receive the best care and support.
Even with a stoma; one can still live the highest quality of life.
Tarsem is the Chairman of Stoma World Kenya. His experience as a colon cancer survivor inspires him to provide our organization with strong leadership. In 2008 he was diagnosed with colon cancer, thereafter he received rigorous treatment.
During this time, he became aware of the plight of ostomates in Kenya and began gathering information about them. This led to the formation of an ostomy support group who began meeting at Aga Khan Hospital in 2010.
In 2012 Tarsem and fellow ostomates in Nairobi were able to register the humble support group as Stoma World Kenya. In its infancy Stoma World Kenya started out with a modest number of between 10-12 members who took on the noble task of providing ostomates with the best care and support.
This goal was realized thanks to the support of Friends of Ostomates Worldwide, who generously provided us with a consistent supply of ostomy appliances. Today, Stoma World Kenya has grown into a vibrant organization supporting over 350 ostomates. Tarsem’s dream is take Stoma World Kenya to a higher level.
Bhasker R. Patel
Bhasker is one of our trustees and veteran ostomate of 22 years. He is a man of a few words who prefers to lead by example. His years of experience in banking and business provides Stoma World Kenya with valuable knowledge on financial management.
A typical morning for Bhasker usually begins with several laps in the pool or playing a round of golf. His energetic routine serves as an inspiration to ostomates in Stoma World Kenya. Bhasker’s dream is for his passion for helping ostomates to burn as brightly as ever.
Mary is the vice-chairperson of Stoma World Kenya. She has been an ostomate for two decades now. During the early days of the group, Mary’s goal was to create a safe space where patients undergoing treatment, or have completed their treatment can share their experiences, offer ways of coping, and reduce feelings of loneliness and anxiety. Her dream is to continue inspiring hope and empowerment by sharing her own experiences.
Sally Agallo Kwenda
Sally Agallo Kwenda is the group secretary of Stoma World Kenya. She actively coordinates group activities, plans meetings, and represents us in the Kenya Network of Cancer Organizations meetings and gives feedback. Sally is also trained in ostomy care and enthusiastically offers her services when called upon to do so. In 2010 she was diagnosed with colorectal cancer and became an ostomate ever since. She is inspired by the resilience of other ostomates desire to live and enjoy a normal life. Her dream is to see stoma centres in almost all hospitals in Kenya thanks to the efforts of Stoma World Kenya. This will greatly enhance the quality of life for all ostomates.
Counselor & Treasurer
Sarah is our counsellor and treasurer. Her years of experience puts her in a privileged position to offer valuable advice on ostomy matters and addiction. Her challenges with colon problems which resulted in two operations inspired her to get actively involved with Stoma World Kenya. She is driven by the desire to share her counselling skills with members through facilitation and to empower them to live positively with their condition. Her dream is for Stoma World Kenya to establish a local office with a dedicated team catering to the needs of ostomates. Besides having an office Sarah’s wish is for Stoma World Kenya to foster vibrant collaborations between ostomates from Kenya and around the world. This rich interaction will give both groups a chance to share their experiences and discuss the latest developments in ostomy care. Lastly, she would like to see Stoma centres open across the country to assist ostomates countrywide.
Mary is one of our board members. Her journey began whilst taking care of her daughter Decimah Kanga’hi Mutira who was a cancer patient. Unfortunately, Decimah passed on in July 2018. Undeterred Mary resolved to carry on her daughter’s dream of giving cancer warriors hope. This noble dream is the fire that spurs Mary to stand in solidarity with survivors and patients alike. Her wish is for Stoma World Kenya to grow to a level where it can provide ostomates with appliances without relying on donors. If we all work together as a team, Mary believes that we will achieve this dream.
Frank is a board member and a colon cancer survivor. He was diagnosed with rectal carcinoma at the age of 17. Besides dealing with the burden of his diagnosis, Frank also had to cope with the high cost of ostomy appliances and the lack of support groups.
Nevertheless, he soldiered on with the goal of creating awareness of the challenges ostomates face.
Frank’s dream is for ostomates to live in dignity and enjoy a meaningful life as a result of Stoma World Kenya’s actions. Ostomates can thrive in their respective fields as long as they are provided with a conducive environment.
Keziah Kiseu is one of our board members. She is a bubbly, generous and easy-going lady who is passionate about caregiving and palliative care. Her years of experience as a life coach have proven valuable in the campaigns she has taken part in – especially in advocating for early cancer screening. Her dream is to see ostomates enjoying a decent and quality life thanks to Stoma World Kenya. She would also like to see them being recognized for their efforts in serving humanity.
Catherine is a board member of Stoma World Kenya. She is also a survivor and a former ostomate. In 2015 she diagnosed with colon cancer. This led her on a journey to India where she underwent several surgeries that resulted in her having an ileostomy in 2015. As a patient, she was deeply touched by the treatment she received. This inspired her to make a covenant with God, that if she got better she would offer her services to ostomates in need. By God’s grace, she was able to realize her dream.
Catherine’s wish is to see all ostomates living a dignified and stress-free life free from any forms of stigmatization. She would also like to totally demystify people perceptions of ostomy.
Keziah is an ileostomy survivor, a stoma advocate and supporter. In 2014, she was diagnosed with a paralytic ileus, which led to a series of surgeries, and eventually the fashioning of a stoma, that has since been successfully reversed.
She is currently championing the cause of both child and adult ostomates in Kenya, through social media platforms, such as Stoma Centre Kenya and Stoma World Kenya, and has focused her vision to improving ostomates living conditions by pursuing the accessibility of affordable necessary ostomy appliances, and more specifically stoma bags, and accessibility to better ostomy care, support and policy implementation from the government.
Keziah is deeply passionate about bringing about change that will eventually see all ostomates in Kenya living full, decent and stigma-free lives.